The Sudden Death in the Young (SDY) Case Registry

Quick Links
Centers for Disease Control SDY Fact Sheet
National SDY Case Registry

Data Coordinating Center for the Sudden Death in the Young Case Registry
National Institute of Health: National Heart, Lung, and Blood Institute


Working to Count, Understand and Prevent Sudden Death in the Young 

The Sudden Death in the Young Case Registry involves four communities in the Tidewater region of Virginia:  Hampton, Newport News, Norfolk, and Virginia Beach.  The registry was developed to more accurately count the number of cases and to better understand the causes and risk factors for infants, children and young adults who die suddenly and unexpectedly.  The information learned from this registry will inform strategies to prevent future deaths.

Included in the registry are deaths from cardiac (SCD) or neurological causes such as epilepsy (SUDEP), or those attributed to Sudden Infant Death Syndrome (SIDS) and Sudden Unexpected Infant Death (SUID). Virginia is one of 10 states participating in this national project which is supported by the Centers for Disease Control and Prevention and the National Institutes of Health.

For More Information:

First year findings from Virginia’s Registry: Report coming soon!

Local and National Bereavement Resources
Epilepsy and SUDEP
Sudden Cardiac Death (SCD)
About Sleep Related Infant Death: Perinatal Health Status Indicators  /  CDC’s Sudden Unexpected Infant Death Activities
About Drowning: Water Safety at Home / CDC’s Drowning Prevention


For more information about the SDY Case Registry in Virginia:

Judy Kurtz, MPH, Sudden Death in the Young Project Coordinator
Phone: (757) 785-3156
Fax: (757) 683-2589