Chair- Lisa Kaplowitz,
Chair, MD, MSHA
Public Health Physician, Deputy Health Officer, Virginia Department of Health
Vice-Chair -
Jana Monaco,
Virginia State Ambassador, Virginia Rare Action Network, National Organization for Rare Disorders
Ijeoma Azubuko, MS
The Ruby Ball Foundation
Wes Fisher
Public Policy Professional
Michael Friedlander, PhD
Vice President for Health Sciences and Technology, Virginia Tech; Executive Director, Fralin Biomedical
Research Institute at VTC; Senior Dean for Research, Virginia Tech Carilion School of Medicine, Professor
of Biological Sciences and of Psychiatry and Behavioral Medicine
Stephen Green, MD, FIDSA
Hospitalist; Infectious Diseases Society of America, Fellow; American College of Physicians, Fellow Society for Healthcare Epidemiology of America, Fellow; Medical staff, Spotsylvania Regional Medical Center
Gregory Josephs, MA
Myasthenia Gravis Foundation of America, Toastmasters International
Peter Kasson, MD, PhD
Associate Professor, Molecular Physiology and Biological Physics, Biomedical Engineering, University of Virginia
Tiffany Kimbrough, MD, FAAP
Medical Director, Mother-Infant Unit; Assistant Professor, General Pediatrics; Children’s Hospital of Richmond at VCU
Susan Klees, BA
Vice President of Communications; HemoShear Therapeutics, Inc.
Richard Nicholas,
PharmD, ND;
Assistant Professor of Pharmacy Practice, Pharmacy Practice Department Chair; Appalachian College of Pharmacy
Megan O'Boyle, BA
Volunteer and Patient Engagement Lead; Phelan-McDermid Syndrome Foundation, RARE-X, and Alliance for Genetic Etiologies of Neurodevelopmental Disorders and Autism (AGENDA), Rare Epilepsy Network
Sarah Paciulli, MS, RN, NP
VCU Health, Affiliate Faculty, VCU School of Nursing
Elissa Pierson
Caregiver
Stephen Rich, PhD
Director, Center for Public Health Genomics; Harrison Professor of Public Health Services, University of Virginia
Elisabeth Scott
Mother and Caregiver
Samantha Vergano, MD, FAAP, FACMG
Division Director, Medical Genetics and Metabolism, Children's Hospital of the King's Daughters
ex officio member
Samantha Hollins, PhD
Assistant Superintendent,
Department of Special
Education and Student Services,
Virginia Department of Education
ex officio member
Jennifer Macdonald, MPH, BSN, RN
Director, Division of Child and Family Health, Virginia Department of Health
ex officio member
John Morgan, MD
Department of Medical Assistance Services