Bleeding Disorders Program

The CYSHCN Hemophilia Program is a legislatively-enacted program for the care and treatment of persons with hemophilia and other inherited bleeding disorders. Virginia recognizes that the ongoing medical costs of treating such bleeding disorders often exceed the financial capacity of families, despite insurance coverage. The program supports a system of coordinated, family-oriented, multidisciplinary services for persons of all ages with bleeding disorders.

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The two most common types of hemophilia are Factor VIII and Factor IX Deficiency. Because hemophilia is carried on the X chromosome (one in the pair that determine sex), most patients with hemophilia are males.

  • Factor VIII Deficiency, also called classic hemophilia or hemophilia A, occurs in about 1 in every 10,000 live male births in the United States.
  • Factor IX Deficiency or hemophilia B, also called Christmas Disease or hemophilia B, is more rare.

Von Willebrand Disease
The most common of all inherited bleeding disorders by both men and women, affecting up to one in every 100 individuals. It is caused by two missing or poorly functioning clotting factors: von Willebrand Factor and Factor VIII. Von Willebrand Factor is a "glue-like" adhesive protein that carries and protects Factor VIII in the blood and sticks to blood vessel walls when they are injured.

Emergency Preparedness Resources for People with Special Health Care Needs or Disabilities

Medical Transition for Youth with Special Needs or Disabilities: