Mild Cognitive Impairment, Alzheimer's Disease and Dementia
According to the Alzheimer’s Association, more than 6 million Americans are living with Alzheimer's, and more than 11 million people are providing their unpaid care.
Following are links to learn more about Alzheimer’s and dementia, along with resources for caregivers and people living with the disease.
Risk Factors for Dementia Infographic
About Alzheimer’s and Dementia
- Mild Cognitive Impairment
- Dementia
- Alzheimer’s disease
- Warning signs of Alzheimer’s
- Facts and Figures
- Research
Caregiver Resources
Online resources:
Alzheimer’s Association Caregiver Help and Support
https://www.alz.org/help-support/caregiving
Virginia Dementia Road Map: A Guide for People Impacted by Dementia
https://vda.viriginia.gov/dementia.htm (full link to follow)
Dementia Home Safety Information Toolkit https://vda.virginia.gov/downloads/demserv/Dementia%20Safety%20Informational%20Toolkit%20Virginia.pdf
Virginia Caregiver Coalition Caregiver Resource Guide https://sharepoint.wwrc.net/VDApublic/Shared%20Documents/Caregiver%20Resource%20Guide.pdf
Respite care:
Virginia Lifespan Respite Voucher Program
https://vda.virginia.gov/vlrv.htm
Hilarity for Charity respite grants (Home Instead)
https://www.helpforalzheimersfamilies.com/get-help/hilarity-for-charity/
ADD DARS phone number
Resources for people living with Alzheimer’s
Alzheimer’s Association “I Have Alzheimer’s” Web Portal
https://www.alz.org/help-support/i-have-alz
Alzheimer’s Association Chapters serving Virginia
- Central and Western Virginia
- Greater Richmond
- National Capital Area
- Southeastern Virginia
Area Agencies on Aging
https://vda.virginia.gov/aaamap
DARS Office for Aging Services
https://www.vda.virginia.gov/dementia.htm
Dementia Capable Virginia
https://vda.virginia.gov/DementiaCapableVA.htm (note site is not yet live)
U.S. Department of Health and Human Services
Virginia Dementia State Plan 2020-2024: Building a Dementia Capable Virginia https://vda.virginia.gov/downloads/2020-2024%20VA%20Dementia%20State%20Plan%20Final_Accessible%20with%20bookmarks.pdf
COMMUNITY PARTNERS
Alzheimer’s Association DE&I partners
https://www.alz.org/about/our-commitment-to-diversity-and-inclusion
Add Faith-based communities, health care providers, etc. dedicated pages
Other?
Cindy–here are the resources from the Dementia Road Map
GENERAL ASSISTANCE AND REFERRALS
| Virginia 2-1-1 | 211 |
| Department for Aging and Rehabilitative Services (DARS) | 800-552-3402 |
| DARS Dementia Services | 804-662-9154 |
| Alzheimer’s Association 24/7 Helpline | 800-272-3900 |
| Alzheimer’s and related Dementias Education and Referral Center (ADEAR Center) | 800-438-4380 |
ORGANIZATIONAL WEBSITES
□ Alzheimer’s Association: www.alz.org or 800-272-3900
□ National Institutes of Health: www.alzheimers.gov
□ Area Agency on Aging: www.vda.virginia.gov/aaamap.htm or 800-552-3402
□ Eldercare Locator (US Administration on Aging): www.eldercare.gov or 800-677-1116
□ Virginia Association for Hospices & Palliative Care: www.virginiahospices.org
INFORMATION AND DOCUMENTS
□ At the Crossroads: Family Conversations about Alzheimer’s, Dementia and Driving and other resources on dementia and driving: www.thehartford.com/resources/mature-market- excellence/dementia-driving
□ Caring for a Person with Alzheimer’s Disease: Your Easy-to-Use Guide from the National Institute on Aging and other dementia-related publications in English and Spanish: order.nia.nih.gov
□ Communication: Tips for Successful Communication During All Stages of Alzheimer’s Disease: www.alz.org/national/documents/brochure_communication.pdf
□ Dementia and Driving Issues: www.alz.org/care/alzheimers-dementia-and-driving.asp
□ Home Safety for People with Alzheimer’s Disease: www.nia.nih.gov/alzheimers/publication/home-safety-people-alzheimers-disease/introduction
□ Living Well with MCI or Early Dementia: www.actonalz.org/pdf/Living-Well.pdf
□ Living with Alzheimer’s—Taking Action Workbook: www.alz.org/getmedia/da9e2ce1-d73c-437a- be7c-d5761afd06e9/taking-action-workbook
□ MedicAlert+Safe Return: www.alz.org/help-support/caregiving/safety/medicalert-with-24-7- wandering-support or 800-432-5378
□ Safety Concerns for People with Dementia—An Info Kit: vda.virginia.gov/dementia.htm
Resources for Legal and Advanced Care Planning
Conversation Starter Kit For Families and Loved Ones of People with Alzheimer’s Disease or Other Forms of Dementia—To help people with dementia have conversations with their family members about how they want to live at the end of their lives—about the care they want, and the care they don’t want. It is designed to be used in the early stages of dementia. www.theconversationproject.org/wp-content/uploads/2016/05/TCP_StarterKit_Alzheimers.pdf
Virginia Advance Directives—Offers information on advance directives related to mental health and other conditions such as dementia, forms and resources: www.virginiaadvancedirectives.org
Honoring Choices Virginia—Offers information, tools and resources for various end-of-life choices: www.honoringchoices-va.org
Virginia Legal Aid—Offers free information and resources for Powers of Attorney, Advance Directives and other elder law topics: www.valegalaid.org/issues/elder-law
Virginia Poverty Law Center—Offers a senior legal helpline and links to referral services: vplc.org/learn/resources/
Senior Legal Helpline: 844-802-5910
Resources On Other Dementias
□ Alzheimer’s Disease and Related Dementias, National Institute on Aging and the Alzheimer’s and related Dementias Education and Referral Center (ADEAR): www.nia.nih.gov/health/alzheimers
or 800-438-4380
□ The Association for Frontotemporal Degeneration: www.theaftd.org
□ Frontotemporal Disorders: Information for Patients, Families and Caregivers: catalog.ninds.nih.gov/ninds/product/Frontotemporal-Disorders-Information-for-Patients- Families-and-Caregivers/19-AG-6361
□ Lewy Body Dementia Association: www.lbda.org
□ Lewy Body Dementia—Information for Patients, Families and Caregivers: catalog.ninds.nih.gov/ninds/product/Lewy-Body-Dementia-Information-for-Patients-Families- and-Professionals/18-AG-7907
□ Vascular contributions to cognitive impairment and dementia: www.nia.nih.gov/health/vascular-contributions-cognitive-impairment-and-dementia