Chair
Gwen Traficant
Board member, Central Union Mission; Caregiver
Vice Chair
Hermionne Johnson, MSN, RN
Caregiver; CEO, Ayana’s Hope Cells; Clinical Nurse Educator
Ijeoma Azubuko, MS
The Ruby Ball Foundation
John R Feore III, JD
Senior Director, Jeffrey J. Kimbell & Associates; Director, Health Policy and Advocacy, Institute for Gene Therapies
Wes Fisher
Public Policy Professional
Michael Friedlander, PhD
Vice President for Health Sciences and Technology, Virginia Tech; Executive Director, Fralin Biomedical
Research Institute at VTC; Senior Dean for Research, Virginia Tech Carilion School of Medicine, Professor
of Biological Sciences and of Psychiatry and Behavioral Medicine
Stephen Green, MD, FIDSA
Hospitalist; Infectious Diseases Society of America, Fellow; American College of Physicians, Fellow Society for Healthcare Epidemiology of America, Fellow; Medical staff, Spotsylvania Regional Medical Center
Gregory Josephs, MA
Myasthenia Gravis Foundation of America, Toastmasters International
Paul Kruszka, MD, FACMG
Director of Pediatric Genetics, Professor of Pediatrics, University of Virginia
Tiffany Kimbrough, MD, FAAP
Medical Director, Mother-Infant Unit; Assistant Professor, General Pediatrics; Children’s Hospital of Richmond at VCU
Sharon Kopis, Ed.D. MS, RN, FNP- C
CNE Professor Nursing, Liberty Nursing
Angela Olmsted, PharmD
Christina Peroutka, MD, FAAP, FACMG
Assistant Professor of Pediatrics, Medical Biochemical and Clinical Genetics, University of Virginia School of Medicine
Elissa Pierson
Caregiver
Stephen Rich, PhD
Director, Center for Public Health Genomics; Harrison Professor of Public Health Services, University of Virginia
Elisabeth Scott
Mother and Caregiver
Judy Stecker
Mother, Caregiver, Co-Founder Wheeler's Warriors Against Batten Disease,
EVP Burson; Former Senior Official U.S. Department of Health and Human Services
ex officio member
Marcus C. Allen, MPH
Program Director, Children and Youth with Special Health Care Needs Program
ex officio member
Samantha Hollins, PhD
Assistant Superintendent,
Department of Special
Education and Student Services,
Virginia Department of Education
ex officio member
Rachel E. Cain, PharmD, BS, RPh, ESMT, CCMT
Clinical Pharmacist II, Office of the Chief Medical Officer at Department of Medical Assistance Services
Vacant
Representative from Health Plan Companies