Parents

Resources

Request Copy of Newborn Screening Results

Newborn Screening Brochure Given in the Hospital English | Spanish

Critical Congenital Heart Disease (CCHD)

Early Hearing Detection and Intervention (EHDI) Program

Sickle Cell Program

Videos

Newborn Bloodspots Save Lives One Foot at a Time English | Spanish | Traditional Chinese

Cystic Fibrosis Foundation Infant Newborn Screening and Care

Websites

A Toolkit for Patients with Genetic Conditions

Save Babies Through Screening Foundation

Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children

Centers for Disease Control (CDC) – Newborn Screening

Centers for Disease Control (CDC) – Sickle Cell Disease

Baby’s First Test

March of Dimes – Newborn Screening

New York Mid Atlantic Consortium (NYMAC)

Cystic Fibrosis Foundation

St. Jude’s Research Hospital, information on on sickle cell and other hemoglobinopathies