Friday, June 19 is World Sickle Cell Day. Sickle cell disease (SCD) is an inherited condition. The blood cells are rigid, sticky and shaped like a crescent, rather than like healthy cells that are round a flexible. People with sickle cell disease often suffer severe chronic pain. The disease can also lead to life-threatening complications.
SCD is a disease that is passed from parents to children. If two people have the sickle cell trait and they decide to have children, there’s a 1 in 4 chance of having a child with sickle cell disease. It is important to know your trait status. Talk to your healthcare provider about getting tested. A simple blood test can determine whether you are a carrier.
An estimated 4,000 to 5,000 people in Virginia live with SCD. It is a disease that affects millions of people throughout the world. SCD primarily affects Black people or people of African descent. Although, people from South and Central America, the Middle East, Italy, and Greece are also impacted.
Earlier this month, Virginia Governor Abigail Spanberger signed into law a legislative package that assists parents, teachers and healthcare professionals who support people living with SCD. The new law, called the Queen Candis Act, is named in honor of the Secretary of the Commonwealth’s daughter, Candis Gabriella King. King died at 15-years-old, due to complications related to SCD. The new legislation is designed to:
- Provide training for school nurses and coaches
- Improve education for individuals supporting SCD patients
- Establish Virginia’s sickle cell trait program
- Establish the Sickle Cell Coordinated Access program to better connect healthcare providers
The Virginia Department of Health (VDH) partners with several health care systems to provide clinical care for people living with SCD. Other programs include the Virginia Statewide Sickle Cell Disease Registry. It is a database designed to help public health officials improve care. The secure database:
- Helps improve referrals
- Helps healthcare providers learn more about the diseases
- Improves healthcare
- Supports research
If you are interested in more information about sickle cell disease, visit the VDH website.

